"Perfect Little Me"
Perfect Little Me was originally created as a means to provide information for Tatiana's family and friends. The process of writing about Tatiana's condition has been a process of healing that is very much in line with Tatiana's journey through life. When we think of babies, we imagine perfection. Tatiana reminds us that perfection comes in many forms; she reminds us that all children are perfect and that they have much to teach us by way of resiliency, hope, and healing.
About Tatiana
Tatiana is a fairly happy baby, with chubby cheeks and a smile that warms the heart. She was born in April of 2009 with esophageal atresia and tracheoesophageal fistula (EA/TEF), along with a few other complications. Shortly after, she was diagnosed with VACTERL Association. Many of her abnormalities are internal and affect critical parts of her digestive system. As a result, Tatiana has required a few surgeries to "correct" these anomalies. Her last surgery was a colostomy closure very close to her 1st birthday. While she still has several battles with uncomfortable bowel movements, she is now a thriving two year old well into her terrible twos, and we are looking forward to witnessing the curiosities ahead. To learn more about her journey, click on our story.
To read about how Tatiana came into this world, start at the beginning by clicking here. You can also follow her on her journey by subscribing to our blog.
If you are a parent who has come across this site in your search for information, resources, or support, I invite you to connect with us and/or share your story.
Perfect Little Me
In my mommy's little tummy
I grew the perfect me,
Tatiana is what they named me;
I’m perfect so you see . . .
I’m a perfect little child
with a perfect set of toes
A perfect little child
With a perfect little nose
I’m the perfect little me
With a twinkle in my eye
A perfect little me
Mommy please don’t cry
A perfect little me
With a perfect little face
A perfect little me
Although, nothing's in it’s place
So … I ask you when you see me
With all my scars and supposed flaws
Don’t cry, or stare, or shy away
Because you know,
I was born this way
It’s made me stronger
every day
In all my perfect little ways.
This poem is dedicated to Tatiana:
A strong little woman in the making;
you’ve endured more than most little souls. -M.C.
