EA/TEF Child and Family Support Connection, Inc.
Tracheo Oesophageal Fistula Support Group (TOFS)
VATER Connection, Inc.
TEF/VATER/VACTRL National Support Network
Birth Defect Research for Children
Fetal Hope Foundation
Genetic and Rare Diseases (GARD) Information Center
March of Dimes Birth Defects Foundation
http://nacersano.org/ (en español)
Lucille Packard Children's Hospital
VACTERL Association Groups on Facebook
VACTERL Association Support Group
The VACTERL Network
DrugWatch.com - Keeping an Eye on Pharmaceuticals
Links to Family Pages
Websites created by families of children with EA/TEF.
The Brayton Project
The Brayton Project was born in the fall of 2011 in honor of Brayton Lester, who lost his fight with EA/TEF at the young age of three.
Please be patient while I make the time to include all of the links of wonderful families whose stories helped me cope in my time of need. I've saved them to multiple locations, and I'll be sure to include them here soon.
Submit a Link
We would love to include links to other family sites in addition to any helpful sites that may not be currently listed here.
If you would like to submit a link, please do so by completing the fillable fields. Thank you!