LinksEA/TEF Child and Family Support Connection, Inc.
www.eatef.org Tracheo Oesophageal Fistula Support Group (TOFS) www.tofs.org.uk VATER Connection, Inc. www.vacterl.org TEF/VATER/VACTRL National Support Network www.tefvater.org Brave Kids www.bravekids.org Birth Defect Research for Children www.birthdefects.org Fetal Hope Foundation www.fetalhope.org Genetic and Rare Diseases (GARD) Information Center www.genome.gov/10000409 March of Dimes Birth Defects Foundation www.marchofdimes.com http://nacersano.org/ (en español) Lucille Packard Children's Hospital www.lpch.org VACTERL Association Groups on Facebook VACTERL Association VACTERL Association Support Group The VACTERL Network DrugWatch.com - Keeping an Eye on Pharmaceuticals http://www.drugwatch.com Links to Family Pages
Websites created by families of children with EA/TEF.
The Brayton Project The Brayton Project was born in the fall of 2011 in honor of Brayton Lester, who lost his fight with EA/TEF at the young age of three. Please be patient while I make the time to include all of the links of wonderful families whose stories helped me cope in my time of need. I've saved them to multiple locations, and I'll be sure to include them here soon. Submit a Link
We would love to include links to other family sites in addition to any helpful sites that may not be currently listed here.
If you would like to submit a link, please do so by completing the fillable fields. Thank you! |
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