Perfect Little Me
  • Home
  • Our Story
  • Blog
  • EA/TEF & VACTERL Association
    • Links
  • How to Support
  • Contact Us

Links

EA/TEF Child and Family Support Connection, Inc.
www.eatef.org

Tracheo Oesophageal Fistula Support Group (TOFS)
www.tofs.org.uk


VATER Connection, Inc.
www.vacterl.org

TEF/VATER/VACTRL National Support Network
www.tefvater.org

Brave Kids
www.bravekids.org

Birth Defect Research for Children

www.birthdefects.org

Fetal Hope Foundation
www.fetalhope.org

Genetic and Rare Diseases (GARD) Information Center
www.genome.gov/10000409

March of Dimes Birth Defects Foundation 
www.marchofdimes.com
http://nacersano.org/  (en español)

Lucille Packard Children's Hospital
www.lpch.org

VACTERL Association Groups on Facebook
VACTERL Association
VACTERL Association Support Group
The VACTERL Network

DrugWatch.com - Keeping an Eye on Pharmaceuticals
http://www.drugwatch.com

Links to Family Pages

Websites created by families of children with EA/TEF.

The Brayton Project
The Brayton Project was born in the fall of 2011 in honor of Brayton Lester, who lost his fight with EA/TEF at the young age of three.

Please be patient while I make the time to include all of the links of wonderful families whose stories helped me cope in my time of need. I've saved them to multiple locations, and I'll be sure to include them here soon.

Submit a Link

We would love to include links to other family sites in addition to any helpful sites that may not be currently listed here.

If you would like to submit a link, please do so by completing the fillable fields.  Thank you!
Submit

Powered by Create your own unique website with customizable templates.