Perfect Little Me
  • Home
  • Our Story
  • Blog
  • EA/TEF & VACTERL Association
    • Links
  • How to Support
  • Contact Us

Fairy Dust

3/26/2014

6 Comments

 
The universe has a way of using our most ordinary and mundane routines to send us messages. Sometimes, if we’re lucky, we catch, absorb, and manage to use those messages to help get ourselves through the insurmountable.

For me, those messages often come by way of books (proud nerd mama moment), television (no shame in that!), or social media (yes, of course I have an entire pinboard of inspirational quotes! I really do.). Sometimes those messages speak to me instantly, other times they take a while to sink in, and still there are those moments of extreme depth when those messages stay with us and resurface from time to time.

Tatiana is almost five now, and I have to admit that there is a part of me that is still holding my breath, waiting, watching, maybe even withholding, and yes, afraid. I don’t think I’m alone. Having met other VATER/EATEF moms, I can tell they’re waiting to exhale in their own way too.

Maybe it’s the visual reminder every time we dress our children or help them bathe – those battle scars that you can’t help but fixate on every once in awhile, wondering how you will respond when and if your child ever asks you about them. Those scars that seem so minimal when we force ourselves to look back at the pictures of our babies in the thick of their journeys.

But then, they redirect our thoughts with the sparkle in their eyes, because these babies hold a special magic that is inexplicable yet easily felt. With that twinkle in her eyes as she dances in her skivvies, I hearken back to a quote that grabbed me and pulled me through some of the most difficult moments earlier on:

"These are the tiny humans. These are children. They believe in magic. They play pretend. There is fairy dust in their IV bags. They hope, and they cross their fingers, and they make wishes, and that makes them more resilient than adults. They recover faster, survive worse. They believe." Arizona Robins, Grey's Anatomy: Invest In Love, Season 6, Episode 8
Picture
For those mommas who are in the thick of their own journeys, the quote goes on to say “In Peds, we have miracles and magic. In Peds, anything is possible." And indeed it is. Nearly five years later, I’ve witnessed so many triumphs accomplished by this little person and even though I fear the silly things on a heightened scale –like her first day of kinder, for instance– her magic and sparkle is enough to carry me through.

6 Comments
Baby monster's momma
3/26/2014 02:36:27 am

Well said, Ro! Each morning as I see my little monster grow, I think of jur little one who is almost 5 & I smile! As much as babies do believe in magic, miracles & fairy dust, I do too as a mother of TEF monster! Her eyes, smile, crawl, claps & I could go on, gives me hope that "we will be ok!"

Reply
Rosanna
3/27/2014 12:09:18 pm

Thank you. The magic is contageous! And these little monsters carry a beautiful fierceness too!

Reply
Lolo
3/26/2014 03:34:49 am

Beautiful!

Reply
Rosanna
3/27/2014 12:11:23 pm

Thank you

Reply
Carla
3/26/2014 03:17:37 pm

so well put… so grateful there is magic!

Reply
Rosanna
3/27/2014 12:07:50 pm

Thank you Carla. I look forward to reading more of your stories on the topic too ;)

Reply



Leave a Reply.

    Picture
    Throughout the process of navigating Tatiana's Journey, I came to realize how critical the creative process has been to preserving my own sanity -- from writing, to crafting, to sewing, and everything in between! In that spirit, I've decided to share some of my work in this space that has so often helped me make sense of my own journey. That's me and the big sis up there just in case you need a face to attach to the voice you find here. ;)

    Evolution of this Blog

    In those early, overwhelming moments, and into the present, several people have asked about Tatiana's condition and the events surrounding her birth.  This blog is, in part, my attempt to share what I can in an accessible space.  It is also my way of creating a written record that celebrates the miracles and and triumphs of life.

    This is, of course, a work in progress.  Writing is therapy and life happens, so bear with me as I go back in time to fill in the gap which now spans nearly a year in time and humor me as I pepper those stories with my own creative musings.


    Subscribe to This Blog

    Subscribe to this blog and receive updates:
    Picture

    By Email


    Picture

    By RSS Feed

    Archives

    May 2014
    April 2014
    March 2014
    December 2012
    November 2011
    January 2011
    September 2010
    August 2010
    July 2010
    June 2010
    March 2010
    April 2009

    Categories

    All
    EA/TEF
    Kindergarten
    Nicu Follow Up
    Tethered Cord



    Subscribe to this blog by entering your email address:

    Delivered by FeedBurner


Powered by Create your own unique website with customizable templates.